A Critical Knowledge Gap
When Mr. Smith fell off a curb while trying to get into his car, his wife called 911 to receive help. Unfortunately, the emergency responders were not familiar with ALS and provided treatment that was not appropriate for someone with a neuromuscular disease. Due to the lack of training, the knowledge gap, and the outdated protocols, he didn’t make it to the hospital. His death was preventable if just one person had listened to the caregiver or had the proper training. Mr. Smith fought every day to survive another day with ALS, yet he died in 4 minutes unnecessarily.
His story is just one of hundreds of similar stories. Even one story about this is one too many.
That’s why Wendy’s Wish 911 exists.
Our goals towards saving lives.
Wendy's Wish 911 raises awareness and shines a light on the challenges of individuals living with ALS and other neurological conditions and the importance of educating all 4 departments of first responders – 911 Dispatchers, EMS, Police and Fire Departments.
There is a critical need for updating policies and protocols currently in place to reflect the real time needs of individuals living with ALS and other neurological conditions.
To make all first responders aware of the greatest resource they have in an emergency situation –– our CAREGIVERS! They are with us 24/7 and know everything about our condition including our doctors’ numbers, preferred hospitals with well-educated ALS doctors, our medications, the equipment we use to keep us alive, how to transport us and with what devices. Most times, unfortunately, caregivers are not listened to and pushed away as first responders and emergency room staff have their own training and protocols. The very best tools available to first responders and emergency staff are our caregivers. Use them!